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Disease Management

Dáil Éireann Debate, Tuesday - 26 May 2026

Tuesday, 26 May 2026

Questions (1136)

Ken O'Flynn

Question:

1136. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains a national registry, prevalence estimate or centrally collated dataset for Friedreich's ataxia patients in the State. [38848/26]

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Written answers

Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for decisions on the pricing and reimbursement of medicines and medical devices; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.

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