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Dáil Éireann díospóireacht -
Thursday, 2 Oct 2025

Vol. 1073 No. 2

Saincheisteanna Tráthúla - Topical Issue Debate

Educational Disadvantage

I thank the Minister of State, Deputy O'Sullivan, for being here and I also acknowledge the communication from the Minister, Deputy McEntee, on my Topical Issue. I wish to raise the roll-out of DEIS plus, which is a significant development in education across this country. It is something of keen focus for the Labour Party. I know the Government has announced, following the general election this year, that DEIS plus would be rolled out across many schools in the country but my firm belief is that we still do not have a timeline or a budget for this.

Last week, I had the great privilege to meet three school principals. One of these, Mr. Kieran Golden, was my former boss in Mayfield Community School. I was absolutely honoured to teach in Mayfield Community School with such fantastic students and colleagues. The school is a DEIS school. The school principals outlined to us the significant challenges they face. The job of a school principal now has significantly changed over many years. Their job, particularly in a DEIS school where you are dealing with serious, different needs as opposed to just academic needs, is quite significant. I will take Mayfield Community School as one example. The deputy principal in the school is a fantastic woman. She is not a full-time deputy principal. She is on 0.75 hours of a deputy principal's role. That is extremely difficult to comprehend because the level of need in the school is quite significant.

Today, the Labour Party launched its alternative budget for 2026 and the party is fully committed to investing in the roll-out of DEIS plus across band 1 schools in this country. It is quite a significant step to take because we must ensure there are absolutely no barriers for any child in this country to accessing the appropriate school that is needed for that child, be it in primary or post-primary. We must also ensure that they have the relevant special educational needs teachers, SNAs and absolutely any other special educational teacher they need to progress in their academic life. Alongside this, we need to promote in all post-primary schools across this country the opportunity to progress in academic life or the opportunity to progress into apprenticeships. We did not have that across the island for many years. As a former secondary school teacher, I can attest that we need to see far more of it. I spent a lot of my time while I was teaching trying to encourage all students, particularly those in fifth and sixth year of the schools I taught in, to progress after they finished school into whatever career they wanted. The rolling out of DEIS plus would be a serious advantage to giving these children the opportunity to progress in life after they finished school. It is extremely important that we acknowledge the fantastic role that SNAs, special educational teachers, guidance counsellors, mainstream teachers, school principals and deputy principals play in our education system. I also want to acknowledge the fantastic students we have in this country. A lot of the time for many years we focused particularly on how good the child was academically. However, right now, we also have significant focus on what other brilliant achievements other children have, be it in academia, sport, arts or whatever it may be. I ask the Government now to produce a timeline and a budget for the rolling out of DEIS plus to benefit not just schools but most importantly students in this country.

I thank the Deputy for speaking on this issue with such passion. He has a lot of knowledge in this area. He has seen the benefits that DEIS has provided with those extra supports in terms of schools where there are a variety of challenges. There are disadvantaged areas and students from all different backgrounds. I have also seen first-hand in my own constituency the benefits those extra DEIS supports can bring. This is why, in the previous Government, we committed to the roll-out of DEIS plus to increase those supports and increase the number of students who would benefit from them. Fair play to the Deputy; he has quite accurately highlighted the benefits of it and also the incredible work that teachers, SNAs, principals and staff do right across the board.

The Department spends over €180 million annually, providing additional supports to almost 1,200 schools in the DEIS programme and reaching approximately 250,000 children. The Minister, Deputy McEntee, is committed to narrowing the performance gap between DEIS and non-DEIS schools and introducing innovative solutions to address disadvantage. Recent research, including the OECD Review of Resourcing Schools to Address Educational Disadvantage in Ireland have highlighted the role of the DEIS programme in providing an education system that consistently outperforms many other OECD countries but also exhibits relative socioeconomic fairness, making it one of the stronger performers globally. This research has also highlighted, however, important differences in outcomes persist for students who experience very high levels of deprivation.

That is why the Government is committed to providing a DEIS plus scheme to support schools with the highest levels of disadvantage. To meet this commitment, the DEIS plus scheme will provide additional support to schools with the highest levels of educational disadvantage and seek to improve education outcomes for children and young people in these schools. The scheme will provide very targeted supports to those who most need it, to tackle the impact of intergenerational disadvantage and to empower them to achieve their potential through education.

Work to develop the scheme is well advanced and the Minister is engaging with Cabinet colleagues to secure the necessary funding for the scheme through the budgetary process. A DEIS plus design advisory group worked with the Department officials to develop the proposal for the scheme. The needs of the children and young people drove the development work. The group includes school principals, home school community liaison officers, and school completion programme co-ordinators. These are professionals who work directly with children experiencing high intergenerational disadvantage. The Department has also engaged directly with children and young people to inform this work. The focus is on shaping a DEIS plus scheme that will support schools with the highest concentrations of children and young people at risk of educational disadvantage to meet the needs of the children.

The Department is also actively engaging with other Departments and agencies, education partners, and stakeholders across the education sector to develop the DEIS plus scheme and aims to integrate and build on existing whole-of-government supports. The culmination of all this work will see the achievement of the programme for Government commitment to deliver a new DEIS plus scheme, to provide targeted support for schools with the highest levels of educational disadvantage, and improve outcomes for children and young people.

As Deputy Kenny can see from this response, a whole lot of work and effort has already gone into designing DEIS plus. It is well advanced and there has been significant stakeholder engagement. The Deputy asked specifically when it can be rolled out. We do not have an answer to that right now but, in fairness, by the Deputy highlighting it and highlighting the importance of it this does accelerate and put the spotlight on the need to roll out DEIS plus as quickly as possible.

I appreciate the response by the Minister of State. It is extremely important that we continue to highlight the significant issues faced by children across this country and the barriers before them in education. Today the Labour Party launched our Alternative Budget 2026. A significant part of this relates to disadvantage in our school communities and in education. In our alternative budget we want to begin the phasing in of all DEIS plus with identified clusters, which would cost €3 million. We want to expand the City Connects programme to all DEIS band 1 schools, beginning with schools in DEIS plus clusters. The first year costs would be €7.2 million. We want to cut the DEIS schools class size ratio to 15:1. The phased first year costs would be €5.5 million. We want an additional 100% increase in capitation for DEIS schools. The first year cost to cover increased energy and operational costs would be €18.2 million. We want to extend the summer school meals pilot to all DEIS schools, which would be €3.2 million. We want a 10% increase in school completion programme funding, which would be €3.7 million. We want to appoint 20 additional home school community liaison positions, which would be €1.7 million. We have a significant costed plan in the Labour Party to introduce DEIS plus. That is the energy and dedication we need from this Government now to tackle disadvantaged children in this country.

I am absolutely fully aware of and appreciate the work that has been done by the Government on this, but with the announcement having been so long ago, we must make sure of this next week. I am hoping for this for the Department of Education and Youth and that when the Ministers, Deputies Donohoe and Chambers stand here next Tuesday, they will give us a clear outline as to what budget will be given towards the advancement of DEIS plus in this country. I appreciate the Minister of State's response.

I reiterate that the Government is committed to tackling child poverty and it sees education as a key enabler to achieve that. The development of the DEIS plus scheme will be a further positive step in this commitment to lifting more children out of poverty to give them the futures they deserve. Since its introduction the DEIS programme has tackled the impact of poverty through supporting the improved attendance and progression of children and young people experiencing poverty. It has also improved education attainment levels, which create greater opportunities for employment and enhanced career pathways. The development of the new DEIS plus scheme will be a key part of a new DEIS plan, which will be published this year. The new DEIS plan will set the long-term direction on supporting children and young people at risk of educational disadvantage and on empowering them to achieve their potential. The plan will focus on improving the opportunities and achievement levels of children and young people at risk of educational disadvantage in all schools. It will also look to develop more innovative approaches to tackling educational disadvantage and to work towards a more flexible system of supports to ensure that a school can receive the right support at the right time.

The DEIS plan will be published this year. I completely appreciate the efforts of the Labour Party in publishing a costed budget with a focus on education, on trying to remove those gaps within education, and on the supports for disadvantage areas while also continuing a lot of the supports that were introduced by the previous Government, including the hot meals scheme. I appreciate that.

It is really important we are having this discussion. We are all behind the establishment of DEIS plus and the expansion of those DEIS services. As the Deputy and the Minister have said, education is the key tool in addressing any of those socioeconomic issues that we have.

Social Welfare Eligibility

I wish to discuss the rule that excludes widows and widowers from receiving illness benefit solely because they are in receipt of a widower's pension, notwithstanding the fact that they have returned to work and are paying all of their PRSI contributions. The Minister of State will be aware that illness benefit is a contribution-based process. If somebody has returned to work and has made their PRSI payments, and then through unfortunate circumstances has to leave work because of an illness, I do not see any reason they should not be entitled to an illness benefit.

There is nothing like a cold, hard case to drive home a point so let me underline a case in my constituency. There was a young woman who at the age of 30 lost her husband through tragic circumstances. After a period of having to deal with everything that is involved in those circumstances and having to tend to her children's needs, she went back to work. Unfortunately, after a number of months the same woman fell ill herself and had to take time off work to take care of herself. Because she was in receipt of a widow's pension, she was not entitled to illness benefit. I find this grossly unfair and it is a gap that we need to resolve. If it is not traumatic enough that a family has to go through the death of a partner and in the event that the surviving partner falls ill, which while it might be uncommon, is not rare, that partner is now putting their own family circumstances into fierce financial hardship. This woman in particular, having done everything right and despite all the odds, goes back to work tries to provide for her family is left in circumstances where she is clearly falling below the poverty line, yet is not entitled to anything. Surely in a system that is fair and proportionate we can revise that rule and ensure that when this happens we as a Government are there for people in these circumstances.

I thank the Deputy for addressing this. She has certainly outlined a hardship case. It is hard to disagree with her description of it as a gap in the system that needs to be addressed. I will just outline the current situation and then perhaps from there we can bring this back to the Minister for Social Protection to ensure he is aware of anomalies.

I will first provide an overview of the supports available to widows, widowers, surviving civil partners and qualified cohabitants, and the illness benefit scheme. The widow’s, widower’s, and surviving civil partner’s pension was renamed as the bereaved partner’s pension on 21 July 2025, the date of enactment of the Social Welfare (Bereaved Partner’s Pension and Miscellaneous Provisions) Bill 2025. This Act extends eligibility to a qualified cohabitant of the deceased person. The bereaved partner’s pension is a weekly payment to those who have lost their spouse, civil partner or qualified cohabitant and are covered by social insurance.

To qualify for this pension, either the person claiming or their late spouse, civil partner or qualified cohabitant must have a certain number of PRSI contributions and they must not be in a cohabiting relationship. As of August 2025, there were approximately 127,400 people on the scheme. The estimated expenditure for 2025 is approximately €1.9 billion.

The bereaved partner’s non-contributory pension is a means-tested payment payable to a person who does not qualify for the contributory version of the scheme. As of August 2025, there were approximately 1,000 people on the scheme. The estimated expenditure for 2025 is approximately €12 million.

The bereaved parent grant is a once-off payment designed to assist with the income support needs of a bereaved partner with dependent children immediately following the death of his or her spouse or partner. The current rate of payment is €8,000.

Illness benefit is the primary short-term income support provided by the Department of Social Protection to those who are unable to work due to illness of any type and who are covered by social insurance. Eligibility for illness benefit depends on the person’s PRSI record and class. As of August 2025, approximately 52,600 people were in receipt of illness benefit. The estimated expenditure for 2025 is approximately €700 million.

With regard to persons in receipt of the bereaved partner's pension being also able to access iIIness benefit, there is a general principle of one person, one payment, which applies across the social welfare system. Given the contingency-based nature of this system, it can happen that a person may experience more than one contingency at the same time but, generally, they can receive only one payment. This principle is common to social security systems across the world. Therefore, in general, illness benefit is not payable concurrently with these pensions. However, if a person is getting a reduced rate of the bereaved partner's pension, they may also get a reduced rate of illness benefit so that the combined amount of both payments reaches the maximum rate of illness benefit to which they would otherwise be entitled.

The supplementary welfare allowance is a means-tested payment for persons struggling financially and can be accessed by customers through their local Intreo office. An exceptional needs payment may also be available to help meet essential, once-off expenditure a person could not reasonably be expected to meet from their weekly income.

There is also statutory sick leave for persons in employment. Workers have an entitlement to five statutory sick pay days in a year. Under the scheme, sick pay may be paid by an employer at 70% of a person’s normal pay, up to a maximum of €110 a day.

The Department of Social Protection will continue to keep its range of supports under review to ensure that they meet their overall objectives. I guess that is the chink of light Deputy Butterly might take from that. The Department will keep its schemes under review. As the Deputy can see, there is a principle of one payment per person, a principle that has long existed. In fairness, the Deputy has highlighted a situation very few would find themselves in. I would imagine it would not be a significant or massive cost to the Exchequer to expand it for those types of situations, especially considering the hardship someone like the Deputy's constituent has been through. I will certainly bring that feedback to the Minister for Social Protection.

I thank the Minister of State. In fact, I welcome the widening of the eligibility in regard to who does and does not qualify for a widow's pension. That, in itself, was an anomaly that was highlighted through a campaign in the press due to that widower. Let us reflect for a moment on the fact that, as the Minister of State said, if somebody is in receipt of a reduced widow's pension, they may also be entitled to a reduced illness benefit so that the combined sum reaches the maximum rate of illness benefit they would otherwise be entitled to. That, in itself, is not sufficient. It does not address the fact that due to tragic circumstances, be it illness or whatever, a household often goes from earning two incomes to earning only one. Very often in those circumstances, even though the widow's or widower's pension is welcome, it does not sufficiently fill the gap that was not there when there were two household incomes. We need to fill that gap because if we are giving half of one and half of the other, we are still back to square one. I see no reason why, if somebody is back at work making their PRSI contributions, they are not entitled to the illness benefit. I am delighted to hear that the Minister, Deputy Calleary, will look into this and review it. I firmly hope he will address and resolve it.

As I referred to in my opening statement, the social system operates on the general principle of one person, one payment. This approach is a standard feature of social security systems throughout the world. It means that, generally, the bereaved partner's pension cannot be received at the same time as illness benefit. I know it is probably no comfort, but my earlier contribution also referred to the option of the supplementary welfare allowance. If an individual is struggling to make mortgage repayments or if the cost of rent or other household goods exceeds income, there is that option, but I get the point. That is very much a last resort, which we should be trying to avoid in all cases, and there should be some safety net in place.

I emphasise that I fully recognise the challenges that widows, widowers, surviving civil partners and qualified cohabitants, especially those with children, face. As I have said, and this is the important point we need to take away from this discussion, the Department of Social Protection will continue to keep its range of supports under review. Any changes to the current system would need to be considered in an overall policy and budgetary context, taking account of the social insurance contribution rates and the overall sustainability of the Social Insurance Fund.

That being said, I outlined in the earlier statement the overall costs of a lot of these schemes, with the bigger scheme costing about €1.9 billion. I am not the Minister but I will certainly bring this feedback to the Minister, Deputy Calleary. However, on amendments like this, where we are trying to cater for someone who is very vulnerable or has experienced extreme loss, I do not believe the cost and significance would be detrimental to the overall State coffers. That, again, is a message I will bring back to the Minister and, as the Deputy said, a lot of these schemes are always under review.

Rail Network

I thank the Minister of State for coming into the Chamber this evening and the Ceann Comhairle for selecting this very important topic. I want to talk about services in my home town of Athy in Kildare South. The population of Athy, in the recent census, was over 11,000 people. That is a growth of 82% since the 2002 census. Every morning, almost 50% of the working population of the town leaves it to avail of work elsewhere. That is a figure that grows year on year as more and more families make the town their home.

We have a wonderful train station. Considerable work has been done by Irish Rail on the train station, particularly around access, over the last number of months and that will benefit a lot of people. The problem we have in the town is that the 12 services that are there each morning are full, and a lot of people are finding it more and more difficult to avail of train times and get a seat on the trains that are there. In Kildare town, which is just a bit further up the track and has a couple of hundred fewer people than the town of Athy, there are 38 services per day versus the 12 that operate from Athy.

I have raised this with the Minister, who has sent that request on to Irish Rail, which has come back to me. In its reply, it said Iarnród Éireann aspires to increase the frequency of intercity services across the network over the coming years, including the Waterford-Dublin Heuston route, which includes the town of Athy. It went on to say that as the new DART+ fleet enters service in the greater Dublin area in 2027, this will free up intercity and commuter carriages for use elsewhere on the network, and that including any necessary infrastructure works, the precise order of the introduction of extra services will be subject to demand and the approval of the NTA.

Since I received that letter, we have launched a petition in Athy. As I speak to the Minister of State this evening, there are almost 4,000 signatures on that petition. It is 3,867, to be precise. They are from people who live in Athy and the greater Athy area and use the train service day in, day out but have problems with it. They are confined to hours they can work in Dublin, Newbridge, Naas and other places where they may get work. That is causing a serious problem for the social infrastructure of the town. There are also a lot of students who, unfortunately, cannot get accommodation in the colleges in Dublin and are still living at home in Athy. They are also suffering because of the times and restrictions in times that are on the line at the moment, so much so that a lot of them, myself included, will get a phone call late at night asking them to go to Kildare or Portlaoise train stations to collect somebody who has either missed a train or had to stay late for whatever reason, be that work or study.

I am asking the Minister for Transport to support the call by the people of Athy to include that train service, and by extension Carlow town, in additional services. What we really need is an hourly service from the town, because it is a growing town. Over 11,000 people live in the town at the moment. We need additional services. We need to ensure that a person can get a seat on the train but also that it does not discriminate against work or study for those who have chosen Athy, the great town that it is, as their place to live in.

I thank Deputy Wall for raising this issue. I have taken a couple of Topical Issue matters from him and Athy seems to feature fairly prominently. Fair play. He is representing the place well. It is interesting that he is providing a bit of a taxi service for anybody who misses a train. That is the right thing to do. Fair play to him.

Funding and policymaking for public transport is down to the Minister of State, Deputy Seán Canney, but as the Deputy knows, the day-to-day operation is for the NTA, in conjunction with Irish Rail and so on. I reassure the Deputy that, as outlined in the programme for Government, Securing Ireland's Future, the Government is strongly committed to enhancing transportation networks and infrastructure development, and public transport plays a key role in the delivery of this goal. To support this objective, under budget 2025, the Department of Transport secured over €658 million of funding for public service obligation and TFI Local Link services, an increase from over €613 million in 2024.

This package included funding for the continuation of the various fare initiatives, such as the young adult card and the 90-minute fare until the end of 2025. Funding has also been provided to extend free child fares on public service obligation, PSO, services to include those aged five to eight years old and to support the roll-out of new and enhanced bus and rail services under programmes such as BusConnects and Connecting Ireland. As is the case with all such measures, all funding matters are being considered as part of the ongoing budget 2026 discussions.

In relation to the Dublin to Waterford line, Iarnród Éireann has informed the Department of Transport that all services on this line stop at Athy Station. I understand that there are ten weekday services daily serving Athy, Waterford and Heuston, with additional services on Fridays and Saturdays. Athy has a typically reduced Sunday offering of five services on the Waterford-Heuston line.

In 2024, 154,449 passengers boarded the train at Athy station and 117,067 alighted, for a total of 271,516 trips to or from Athy last year. larnród Éireann is working towards a strategy for enhancement of services on InterCity routes in the short to medium term. However, it must be noted that these enhancements will be subject to agreement and funding by the NTA, as well as the completion of other projects in order to release rolling stock to realise these service enhancements. To meet growing demand, larnród Éireann is deploying all available fleet during peak times. In 2024, 41 additional InterCity railcar carriages were introduced, boosting capacity on key routes, including Sligo, Galway, Westport and Belfast.

As part of DART+, two fleet orders have been placed, for 185 carriages, largely battery electric with some electric units. The first order for the purchase of 95 additional DART carriages, comprising 65 battery electric carriages and 30 electric carriages, has started arriving and is undergoing certification and safety tasting. It is intended that the new battery electric sets will be initially deployed on the northern commuter line, serving Dublin from Drogheda, which does not necessarily help Deputy Wall's situation. The point is that efforts are being made to expand services. The Minister of State, Deputy Canney, is making every effort to increase available funding. Every time that a Deputy comes in here and looks for extra public transport services, that has to be taken seriously and delivering that should be encouraged as much as possible.

It is incredible to see the demand for train services. I am noticing lately that there is more and more demand for even the big intercounty train services. We need to accommodate that. It should be a given that public transport is available. There should not be situations where people have to get into their own car to pick people up. I know that Deputy Canney will take this request seriously. He is not involved in the day-to-day running but I know that he can certainly relay messages to the NTA.

I thank the Minister of State for his comprehensive reply. I thank the Minister of State, Deputy Canney, too. It is good news that the DART+ fleets are being rolled out, albeit on the Drogheda line, because that will free up carriages on the Drogheda line, which is what we want. We are first up, best dressed in Athy looking for those additional carriages that come as part of the new DART+ carriages that the Government has already welcomed and that will be part of the northern commuter line, serving Dublin to Drogheda. That is the part that I want to highlight with the Minister of State and, by extension, the Minister of State, Deputy Canney. Once those carriages are put on the Drogheda line, it will free up the additional carriages. The people of Athy, through their petition and their public representatives, are asking that those carriages that were on the Dublin to Drogheda line would come and provide additional services on the Athy and, by extension, as I said, Carlow line.

The figures speak for themselves when you see that 271,000 people used the train station in Athy in 2024. That number is only growing. Thankfully, a number of new housing estates are being built in Athy and in various villages and towns in the locality. The Athy train station services an area extending into County Laois so a large cohort of people use that station each morning. There is adequate car parking and so on for an expansion at the station.

It is positive news that the new carriages are on the way for DART+. That is what the reply from the Minister of State, Deputy Canney, and Iarnród Éireann actually said. It was that once those were in place, it would free up the other carriages. I am making a plea to both Ministers of State that the people of Athy are seeking those freed-up carriages to be put on the Waterford to Heuston line, because when that number of people are using public transport, it is always good and we should encourage more people to use public transport and save those car journeys late at night for those people who cannot get a train home to the town of Athy.

That is a point well made. Athy is obviously a growing town. It is an important commuter town, not just for people to work and commute but also for people to study and commute, so it is important that we facilitate that, take cars off the road and provide as much public transport as possible. The investment in the extra carriages, as outlined, on the Drogheda line will free up carriages. Deputy Wall has made the case well that much of that should be put on the Waterford to Heuston line, thereby enabling greater capacity for Athy. He is right that the numbers speak for themselves. An impressive number of journeys are taken on that line, in that area. We have to support that. If we are serious about reducing emissions and about climate action, wherever possible and where we have demand we need to facilitate this type of journey. I appreciate the Deputy bringing it up. If there is positivity to be taken from the response, it is that Iarnród Éireann is working towards a strategy of enhancement of services on InterCity routes in the short to medium term, but this will all be dependent on funding. I know that Deputy Canney is fighting hard for extra funding for public transport.

I thank the Minister of State.

Hospice Services

We are moving to health now. I think the Minister of State, Deputy O'Sullivan, has covered education and transport this evening and I am not sure what else. Fair play to him. I want to talk about the LauraLynn Foundation. I recently met the chief executive and head of communications in advance of the budget. To give the Minister of State a bit of background, the LauraLynn Foundation was established after the loss of two sisters, Laura and Lynn McKenna, to illnesses in 1999 and 2001. This tragedy inspired their parents, Jane and Brendan McKenna, to found the LauraLynn Hospice, Ireland's first dedicated children's palliative care unit. They had witnessed at first hand the need for specialised home-like support and, of course, palliative care. The work that this hospice does is phenomenal.

When I met the CEO, she acknowledged the recent changes in the programme for Government, where there is a commitment to deliver a new national policy for palliative care for children and to increase funding for children's hospice care. The hospice is asking for these programme for Government commitments to be prioritised urgently in the upcoming budget. Time is precious for these children and their families, as the Minister of State knows. To ensure children have timely access to hospice care, the LauraLynn Foundation urgently needs that funding. Statutory funding has not kept pace with the growth in demand for the service and it will run a deficit of €1.9 million in 2025, rising to €2 million in 2026.

I will give the Minister of State an idea of the demand that the hospice experiences. In 2021, 203 children were receiving palliative care in the hospice.

For 2026 that is predicted to rise to 440. The number of families receiving bereavement care was 119 in 2021. That will more or less double by 2026 to 230. The number of community visits the hospice conducts has risen from 380 in 2021 to a predicted 4,500 in 2026.

There are estimates that 2,000 children in this country require palliative care. As I have just demonstrated, the hospice is providing care for approximately 440. There is clearly an unmet need here. The work it does is phenomenal and needs to be supported by the HSE and the Department of Health in the coming budget. To keep pace with demand, the foundation continues to actively fundraise. I again refer to its pre-budget submission. The amount it fundraised in 2021 was €3.2 million. By 2026 it estimates it has to fundraise €5.7 million. The service this group is providing is clearly increasing. It has increased by 180% since its inception. The demand is clearly there. I understand we are not going to negotiate the budget tonight on the floor of the Dáil. However, I would like the Deputy to take a message back to the Department of Health and the Minister, that of all the budgetary asks she is going to have, this is one of the most worthy.

I thank the Deputy for raising this issue. I know the LauraLynn foundation is something he has always advocated for and fought for. I agree with him 100%. The merit and support provided by organisations and foundations like the LauraLynn children's hospice represent unbelievable value for money. The service they provide is incredible. I liken it to Cancer Connect or ARC house, which are organisations we should really be supporting financially.

Children’s palliative care is provided through a shared care approach involving GPs, paediatricians, community specialist palliative care teams, clinical nurse co-ordinators and the Children’s Health Ireland specialist palliative care team. All these teams work collaboratively in caring for the child and their family. A key enabler of this model of care is the remote support provided by the consultants in paediatric palliative medicine at Children’s Health Ireland at Crumlin and Temple Street. The voluntary sector, including organisations such as LauraLynn children’s hospice and the Jack and Jill Foundation, provides essential support to the statutory services with additional in-home nursing and respite supports for families. LauraLynn also provides inpatient hospice care at its eight-bed facility in Leopardstown, south County Dublin, along with a bereavement service.

In 2024, 340 children were supported at home by clinical nurse co-ordinators for children with life-limiting conditions each month. Some 78 children received specialist palliative care in Children’s Health Ireland at Crumlin and Temple Street each month and 49 children were admitted each month to LauraLynn children’s hospice. LauraLynn receives core funding from the Health Service Executive under a section 39 service agreement. Recurring core statutory funding for LauraLynn children’s hospice was allocated for the first time in budget 2021. In 2022, an additional €800,000 was provided in once-off funding. In 2023, €800,000 was provided in additional recurrent funding to LauraLynn, increasing its base funding to €2.3 million per year. In 2025, State funding increased further to €3.3 million, representing over 30% of LauraLynn’s total operating costs. This funding has been used to provide a sustainable financial base to the organisation. It has increased LauraLynn's hospice in the home service across Leinster, Munster and Connacht. LauraLynn’s pre-budget submission request is to be funded to the tune of €5.3 million, or 50% of its total operational costs, in 2026. This request will be considered as part of the overall budgetary and Estimates process.

LauraLynn plays a significant role in the overall delivery of children’s palliative care services nationally. The Department of Health, HSE, and LauraLynn children’s hospice have all worked together to develop children’s palliative care services in accordance with the national children’s palliative care policy. The Department of Health and the HSE are both project sponsors of work currently under way in Trinity College Dublin on enhancing children’s palliative care in Ireland. The Department of Health is also commissioning an evaluation of the 2009 national policy on children’s palliative care. The evaluation will review and assess the implementation of the 2019 children’s palliative care policy and identify the areas of progress along with any gaps which may need to be considered in future policy development. Findings from both these studies will inform evidence-based policy decisions in the development of the national children’s palliative care policy and assist with national service planning.

The Deputy has highlighted what the LauraLynn hospice does. It is an incredible foundation and organisation. It provides a service that can never be replaced, certainly on behalf of the State, to families and children right across Ireland. If there is positivity to be taken from that response, it is that the Deputy has seen how the spending profile has gone year on year. It has increased significantly year on year as per that response. The submission LauraLynn has made this year is being taken seriously and is being considered. I would be pushing with the Minister for Health that it would get all it is asking for, with the hope it would get a significant increase in funding again.

I thank the Minister of State for acknowledging the great work the hospice does. I should have led by saying I remember that a few years ago, I heavily lobbied the then Minister for public expenditure - I think it was Michael McGrath at the time - about Marymount hospice, which does phenomenal work in Cork. It is now fully funded in the area of staff. An arrangement was done with section 38 and section 39 workers. It is now fully funded as an adult hospice. Going forward, the care delivered by the LauraLynn foundation deserves the same treatment that the Marymount hospice received a number of years ago when that agreement was made. I reiterate that generally, when it comes to illnesses in children, they tend to be rare diseases and conditions. They appear to be more complex. There are effects on siblings and the family, and life must go on while all of this is happening. They must continue to attend school and do the normal day-to-day things we all take for granted. The care they provide is in many ways more acute than other comparatives. I reiterate my call for the funding. It is one of the genuine asks that will be made. I also mention the children's palliative care policy, which the Minister of State referenced in his response. The only thing that gives me concern is that they are on about reviewing the 2009 children's palliative care document. The programme for Government commits to a new care policy, and not a review of an old one. I hope that will be reflected in the Minister's work ahead.

We will get clarity on whether it will be a review or a brand-new policy. The Deputy mentioned some good examples. He has been an advocate for all of the organisations he mentioned. We know he has been championing the highlighting of rare diseases, especially among children, over this term and the previous term. I refer again to Cancer Connect. A number of years ago it received no funding from the State, and now it does. He mentioned Marymount, which is now completely funded by the State. All of these are going in the right direction. The current funding for LauraLynn is €3.3 million. The ask is €5.3 million. It is a significant increase, but the amazing comfort, care and attention it gives to families and children who find themselves in these situations is extraordinary. Therefore, any ask should be taken seriously, and the Deputy has put the case well today.

Cuireadh an Dáil ar fionraí ar 4.19 p.m. agus cuireadh tús leis arís ar 4.24 p.m.
Sitting suspended at 4.19 p.m. and resumed at 4.24 p.m.
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