I welcome the Minister and thank her for coming here to take this matter regarding the important issue of endometriosis. It has been almost a year now since the publication of the national endometriosis framework. I acknowledge that publishing the framework was an important step forward. I really appreciate the constructive engagement I have had with the Minister on endometriosis care over the last year.
Today is about taking stock. Patients want to know what has actually changed since the framework was published. As we know, endometriosis affects one in ten women in Ireland. If we had proper data, it would probably show that one in six or one in seven is affected. It is not just a painful period. It is a chronic inflammatory whole-body disease that can affect the bowel, bladder, diaphragm and other vital organs, including the lungs. It impacts every aspect of a woman's life, including her education, employment, fertility, relationships and mental health. For many years, women living with endometriosis have told us the same story. They wait years for a diagnosis. They are often told their pain is normal. They struggle to get access to specialist care. In many cases, they are forced to travel abroad for treatment because we simply do not have the proper treatment here.
When we met earlier this year, the Minister outlined a number of important commitments. I would appreciate an update on these today. With regard to education and training, the Minister advised that additional training would be provided for GPs and consultants to improve awareness, diagnosis and referral pathways. Will the Minister provide an update on the progress that has been achieved? Has this training commenced?
How many healthcare professionals have participated?
We discussed the importance of improving specialist imaging. Too many patients continue to tell us they have had MRIs or ultrasounds reported as normal here only for extensive endometriosis to be discovered during surgery. The Minister committed to improving specialist training for radiographers in identifying endometriosis on imaging. Will the Minister outline what progress has been made in implementing this commitment and how the Department intends to measure whether diagnostic accuracy is improving?
We also discussed the endometriosis interim surgery abroad scheme. While I welcome the establishment of the scheme, patients continue to raise concerns regarding access. Gatekeeping from consultants has been commonly described to me, whereby consultants refuse to refer people abroad. A question I am constantly asked is about the exploration of adding additional countries to the scheme, in particular Romania and Greece. Is there an update on these countries being considered, particularly given the significant number of Irish women who travel to seek treatment there?
I also welcome the fact that endometriosis now has its own HSE clinical code. This is an important step in understanding the true scale of the disease. Will the Minister provide an update on how this data is being collected and how it will be used to improve future planning and service provision? While progress has been made, patients need to see the progress reflected in their own experiences. They need shorter waiting times, earlier diagnostics, access to specialist imaging, multidisciplinary teams, on which I hope the Minister will elaborate more, and timely treatment. The framework gave hope to thousands of women living with endometriosis in Ireland. I hope that today the Minister will outline how these commitments are being translated into tangible improvements in services. Ultimately, this is how the success will be managed for the women out there.