Dáil Éireann Debate, Tuesday - 18 November 2025
1027. Deputy Sorca Clarke asked the Minister for Health if a group (details supplied) holds any official authorised role to collect, process, or manage patient data on behalf of the Women’s Health Framework, the Department of Health, or the HSE; and if so, to outline the legal and administrative basis for such an arrangement. [63105/25]
Amharc ar fhreagra1028. Deputy Sorca Clarke asked the Minister for Health if she will publish the governance structure, data protection impact assessment and data protection processes associated with any collection or storage of patient information under a project (details supplied) or any related element of the Women’s Health Framework. [63106/25]
Amharc ar fhreagraI propose to take Questions Nos. 1027 and 1028 together.
The group referred to by the Deputy does not operate under the remit of my Department and as such I have no role in its operation, activities or governance.
The Endometriosis Priority Actions Advisory Group was established in September 2025 to improve women’s health outcomes and experiences of women with endometriosis. The advisory group has been established under the umbrella of the Women’s Health Taskforce. The establishment of this group arose from priorities identified following the Endometriosis Patient Forum held on the 1st September 2025.
The advisory group consists of existing members of the Women’s Health Taskforce, officials from relevant policy areas in my Department, representation of the HSE’s National Women and Infants Health Programme, the National Women’s Council and endometriosis advocates. I am aware that a representative of the group referred by the Deputy is one of five endometriosis advocates on the advisory group. The voice of women is tantamount to the work of the Women’s Health taskforce and the inclusion of these advocates on the advisory group is fundamental to its remit.
The advisory group has a key role to play in advising on and the oversight of specific actions set out in the group’s terms of reference.
The views of all women and girls affected by endometriosis are important to me and the Women’s Health Taskforce. I will continue to listen to women to hear about their experiences with a view to continuing the work we to improve health outcomes for women and girls.
